Fibromyalgia Syndrome – A Mysterious Disease
81Numbers of Fibromyalgia Patients
Nearly 9 out of 10 Fibromyalgia patients are female. Since 2005, this diagnosis in the United States has doubled to about 10 million Americans and an estimated 3 to 6% of the world population. While 75 to 90% of the patients are women it also occurs in men and children of all ethnic groups. This disorder is often seen in families among siblings or mothers and their children. Typically the diagnosis is usually made between the ages of 20 and 50 years of age, however, the incidence rises with age so that by age 80 approximately 8% of adults meet the American College of Rheumatology classification of Fibromyalgia.
Fibromyalgia Pain
What Causes Fibromyalgia?
Thousands of sufferers live through each day not understanding why they can barely function and many doctors do not understand this disease. Even the doctors that do understand the disease don't always know how to treat it. Physicians are not sure of the underlying cause for this disease, however, a number of studies show multiple physiological abnormalities, so there is some progress being made.
Recent study showed that genetic factors may predispose individuals to a genetic susceptibility. Fibromyalgia often occurs following a physical trauma, such as an acute illness or injury, which may trigger the development of this disease. New research has begun in the areas of brain imaging and neural surgery. Medical researchers have just begun to untangle the truth about this life altering disease
Diagnosis
There are no specific tests for Fibromyalgia which make the diagnosis difficult. This is a problem for patients as sometimes they are written off as depressed, lazy, or their symptoms are just a fantasy of their mind. The diagnosis comes from a patient’s history, symptoms, a physical examination and accurate manual tender point examination. It typically takes a patient five years to get a diagnosis.
The patient must meet the following diagnostic criteria:
- Widespread pain in all four quadrants of the body for minimum duration of three months.
- Tenderness or pain in at least 11 of the 18 specified tender points were pressure is applied.
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Diagram Courtesy of National Fibromyalgia Association
Fibromyalgia Syndrome
Fibromyalgia is it complex, chronic pain disorder that affects people physically, mentally and socially. It is a syndrome rather than a disease. A syndrome is a collection of signs, symptoms and medical problems that tend to occur together but are not related to a specific disorder.
What are the symptoms of Fibromyalgia according to the National Fibromyalgia Association?
- Pain: the pain is profound, widespread and without relief. It can migrate to all parts of the body and vary in intensity and it's also been described as a stabbing or shooting pain which can be deep muscle aches. Sometimes there is numbness, tingling, muscle twitching and burning which adds to the discomfort. It is often worse in the mornings. Some factors that affect the pain are cold/humid weather, non– restorative sleep, physical and mental fatigue, excessive physical activity, physical inactivity, anxiety and stress.
- Fatigue: the fatigue of Fibromyalgia is much more than just being tired after a busy day it's an all-encompassing exhaustion that can interfere with your life on every level. The symptoms include profound exhaustion and poor stamina.
- Sleep problems: Many patients have associated sleep disorders that prevent them from getting deep, restful, restorative sleep. Medical researchers have documented specific and distinctive abnormalities in the Stage 4 deep sleep of these patients. During sleep, Fibromyalgia patients are constantly interrupted by bursts of awake like brain activity, limiting the amount of time they spend in deep sleep.
- Other symptoms/overlapping conditions: Other symptoms may include irritable bowel and bladder, headaches and migraines, restless legs syndrome, impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud’s syndrome, a neurological symptoms and impaired coordination.
Fibromyalgia Signs and Fibromyalgia Symptoms
Diagram Courtesy of Every Day Health
Ways to Help Yourself
Reduce stress: Allow yourself time to rest each day and avoid or limit over exertion and emotional stress. You they have to learn to say no without feeling guilty. Patients who quit work or drop all activity tend to do worse than those who remain active. Meditation and deep breathing exercises are great to help with stress management.
Get enough sleep: Since fatigue is one of the main characteristics of the disease getting enough sleep is essential. Practice good sleep habits by going to bed about the same time and getting up at the same time each day.
Exercise regularly: Initially exercise may increase your pain. Start gradually and regularly with simple exercise often decreases symptoms. A physical therapist can help you develop a home exercise program. Good posture, stretching and relaxation exercises are also helpful.
Pace yourself: Keep your activity and even level because if you do too much on your good days you're going to have more bad days. Moderation means not overdoing it.
Maintain a healthy lifestyle: Eat healthy foods, limit caffeine intake, do something each day that you find enjoyable and fulfilling.
Fibromyalgia Treatment
According to Mayo Clinic treatment involves using medication
and self-care where they emphasize minimizing symptoms and improving general
health. Only take medication that is prescribed by your physician.
- Analgesics: acetaminophen (Tylenol) may ease the pain and stiffness. Ultram is a prescription pain reliever that may be taken with Tylenol. The doctor may also prescribe non– steroidal anti-inflammatory drugs – such as ibuprofen, Advil, Motrin or naproxen sodium, believe and other in conjunction with other medications.
- Antidepressants: Cymbalta and Savella may help ease the pain and fatigue associated with the Fibromyalgia. Your doctor may prescribe amitriptyline or Prozac to help promote sleep.
- Anti–seizure drugs: Medications designed to treat epilepsy are often useful in reducing certain types of pain. Gabapentin and Lyrica are the most commonly used medications in this group. Lyrica is the first drug approved by the FDA for the treatment of Fibromyalgia.
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In Conclusion
Fibromyalgia patients can get very frustrating trying to get a diagnosis, particularly when it takes five years in many cases. Also, there is no known cure, no real test to prove you have the disease and the future must seem uncertain.
Studies have shown that there are things you can do to help yourself if you have Fibromyalgia, which will at least relieve some of the symptoms. There is a lot of research being done at this time so we hope to see the cure in the not-too-distant future
The copyright to this article is owned by Pamela Oglesby. Permission to republish this article in print or online must be granted by the author in writing.
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I have it too, but treating it as directed at fibromyalgiacure.com, I no longer have the pain or muscle spasms. Right, it is diet plus you'll see a blend of amino acids developed specifically to treat Fibromyalgia by Dr. Vickery is a winning combination :). I have a hub on it, too, in case you'd want to look there first.
Pamela I had never hear of fibromyalgia before, it sounds horrible and I am so sorry to hear that you and the above contributors have had to suffer through this.
I do agree that our diets do effect our overall well being considerably and so glad that you are seeing improvement since making the adjustments in your diet.
I do hope and pray that more light be shed on this syndrome and ways for prevention and cure.
Thanks for sharing.
Gosh, Pamela,what a terrible disease. How can anybody cope with it? Thank your very explicit hub.
Dear Pam, I have a friend that has this and she can't be touched at all. Yes this is very serious situation and she had to fight hard for her disability. I love this hub it will help other to understand this horrible illness. rate up up love & peace darski
Pamela, it is a horrible disease. I have had it for years. After taking medication for pain and beind semi-zobie like, I decided to try the diet route. It's not perfect but boy has it helped. I have also found that one of the most important things is frame of mind. You absolutely must have a positive attitude. Thanks for writing such a wonderful comprehensive article. Voted up and awesome.
You have done it again. Great summary of a complex condition. It is information all in one place.
This is just fascinating. You've really dug in deep, explained it well as fibromyalgia is a difficult disease to clearly define. :) Katie
Pamela- I'm so sorry that you've had to live with this. My mom was diagnosed a while back, and I know she was relieved to put a name to her symptoms after years of being told they were "all in her head".
I'm going to share this with her, I know she'll enjoy this hub. As always, this was extremely informative and easy to read.
I'm glad you are doing better.. poor health is one of the worst things to be burdened with! You have turned it into such a positive!!
Dear Pamela,
I have had fibromyalgia for years. When it was finally declared a disease and not just a syndrome, I believe it was the turning point for some doctors attitude toward fibromyalgia.
Diet and exercise, as well as a positive outlook does indeed make a difference in your pain level, your tolerance level and your ability to cope with all it throws at you.
I would recommend that the exercise be done in a warm water pool. I use the YMCA. There is no after affect other than you might still be a bit tired. Okay, you will definitely be a bit tired! :) Warm water exercise eliminates a lot of pain and a lot of injuries we do to ourselves in the name of improvement.
I have several articles related. Stop on by. We fibromites need to stick together. A lot to learn and a lot to share.
My daughter pointed out your hub to me and I am so glad she did. It was not only informative, but very well written.
I voted up, useful and awesome.
Good video!
I would caution using any of the mentioned medication without the supervision of a fibromyalgia-friendly doctor.
Thank you so much for the information.
Good Morning Pamela,
I wasn't aware of Fibromyalgia until a couple years ago when my wife's sister was diagnosed with the affliction. Since then I was surprised to learn the fibromyalgia wasquite common. Your Hub was most interesting and informative which all of Hubs are. Thank You very much.
It can be hard on a marriage. Imagine your spouse wincing in pain with every touch.
You're a good writer, Pamela. Very helpful information. Voted Up and useful!
Fibromyalgia sounds like a horrible condition. May it never come my way! My cousin was diagnosed with fibromyalgia three years ago, in her case it was caused by severe stress, and that was the first time I heard of this illness. Thanks for a very informative hub, Pamela. I’ve bookmarked this with the hope I will never have to use it to diagnose myself, but only to refresh my knowledge about this syndrome. See you again soon.
Glad to see that diet has helped with this. What kind of diet exactly? One that is low-inflammatory? High in anti-oxidants? Low-glycemic? Any insights into this?
Some very good information Pam. Great article!
Great information Pamela - I was just diagnosed with that last fall although I'm just not sure that is the correct diagnosis....being my own doctor most of the time! He tried treating me with Cymbalta which is an antidepressant and although it did make the pain 'not be there' I really didn't like the feeling of not being myself if that makes sense.
I felt 'numb' sometimes and that was very annoying to me. Plus I always believe that the best way to stop pain is by addressing it not hiding it. And in my case, I think it is just 35+ years of typing and typing - things like that tend to eventually catch up with you! I have always wished I could type with my feet - I might give that a try and let you know how that goes!
This is such a sad thing. I feel for anyone that has to go through it. Stuff for pain just don't help enough. I have heard it is constant misery. This is very useful info. Great hub.
Thanks for putting this together Pamela. I've not known much about it but know folks with it. God bless!
I've had FMS for about 12 years, and I've struggled with the pain and the medications. This is a good article. I use alternative healing methods, and it was nice to see an article that included this, a lot of them that do don't tell you where to look for it. Great job.
Well-written informative hub article Pamela99 chock-full of 'facts and figures' relating to Fibromyalgia.
As a Fibromyalgic/Fibromite I am ever so grateful and thank you for helping to educate and raise the awareness of Fibromyalgia. :-)
I am diagnosed with severe case of Fibromyalgia.I had it now for the past years. It's a constant battle with pain and exhaustion.
This hit me hard, since I have been a very active person in my days. All of the sudden, I can't do the things I used to love to do. However, I have found by writing, it gives me the strength to keep going, even if most of the times, its so painful to use my hands.
On my "good" days, I try to make it up, by doing some crafting, baking, going for a walk. . . only to pay for it dearly a few hours later.
By doing Mindfulness Meditation,healthy lifestyle- nearly vegetarian and keep away from stress, I hope and think that my pain will decrease one day.
I'm so grateful that by this hub you help to raise the awareness of Fibromyalgia.
Voted up!!
Thank you so much!
Sannel
Great info, a friend of mine has recently been diagnosed with Fibromyalgia (and I didn't know what it was). I think that the most difficult part for her was that her symptoms were not visible, and before diagnosis her family and employers found very difficult to believe that she was always in pain. At least now that she knows what she has, she can explain it better to her employers and family.
Pamela99- I am so happy to see that you are getting the word out about FMS! So many people are suffering with this dreaded illness, yet most people still don't know what it is. Sure, they may have heard the term "Fibromyalgia" before, or might have seen a commercial regarding medications to treat FMS, but don't really have a clue what patients are dealing with on a day to day basis. I'm seeing more & more that family members of FMS patients aren't even sure of all the symptoms their loved ones are suffering with! So the more people you educate the better for the whole FMS/ CFS community. I'll be here following in your footsteps soon!
Thank-you for your work. Well Done! :)
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Pamela N Red Level 6 Commenter 15 months ago
Great article. I've had it for years. I was on strong medications for a few years and finally decided to take myself off as the drugs were causing side effects I didn't like.
I treat myself now with diet and exercise. I'm almost completely symptom free as long as I avoid certain foods.